Adaptive Sports for People with MS

Spaulding Adaptive Sports Centers
Information Session & Demo Event
The Boston Home, 2049 Dorchester Avenue, Boston MA 02124
Friday, March 29, 2024, 10 am -1 pm, Free Admission

In honor of Multiple Sclerosis (MS) Awareness Month, The Boston Home is proud to welcome Spaulding Adaptive Sports Centers (SASC) for an information session and demo event. The Boston Home is a community for adults with MS and other advanced neurological disorders offering residential care as well as wellness programs. Join us to meet the SASC team, learn about the adaptive sports equipment and programs they offer, and find new ways to stay active while living with MS. For more information or to RSVP, please contact Victoria Stevens, Director of Communications at The Boston Home, 617-326-4310 or vstevens@thebostonhome.org.

Spauling Adaptive Sports Clinic Flyer

Informational Zoom: Ask A Social Worker

All NEPVA members with MS and their caregivers are invited to an informational zoom on April 16th at 5:30 p.m. with VA social workers Michelle Turcotte-Smail and Tina Birdsall. Co-hosted by NEPVA Director Chuck Houle, the zoom will include a brief presentation on benefits available to veterans with MS followed by an informational Q&A session.

Presenters:

Chuck Houle: Member of the New England Chapter Board of Directors and Chapter MS lead to National PVA.

Michelle Turcotte-Smail, LICSW:
Spinal Cord Injuries and Disorders Clinic and Polytrauma Clinic Social Work Coordinator at the White River Junction VA Medical Center. Michelle has worked for Veterans Health Administration for 14 years in the Spinal Cord Injury/Disorders Clinic, Polytrauma Clinic, Primary Care, and Geriatrics.

Cristina Birdsall, LSCW:
Rreceived her Bachelor’s Degree in Psychology from University of Connecticut and her Master’s Degree in Social Work from Southern Connecticut State University. She began her social work career at the West Haven VA in 2012 on the inpatient hospital units before transitioning to the Spinal Cord Coordinator position in 2016. Tina took over the role as ALS Coordinator in 2020.

Please contact Kristen McCone Gordon at kristen@pvanewengland.org with any questions on this event or NEPVA Veterans with MS program.

Join Zoom Meeting: https://us06web.zoom.us/j/81131798705?pwd=i0xwqY7QdgScea8gDChWHt3jnK4Mkj.1
Meeting ID: 811 3179 8705 Passcode: 124060

Real Talk MS Podcast

You’ve just had your appointment with your neurologist or MS Specialist and you’re on your way home, feeling like you weren’t heard. Maybe there wasn’t sufficient time. Or it might feel like your opinion simply isn’t valued. Your frustration could even be the result of language issues and cultural barriers that make communication difficult. Whatever the reason, it doesn’t have to be this way.

Dr. Luis Manrique-Trujillo joins me this week to share tips and strategies that will improve the quality of communication between you and every member of your MS care team. Dr. Manrique-Trujillo is a neurologist specializing in neuroimmunology and multiple sclerosis at MedStar Georgetown University Hospital in Washington, D.C.

We’re also sharing some fascinating research that traces the gene variants that increase someone’s risk of developing MS all the way back to the Bronze Age.

We’ll tell you about a small study that may explain how the Epstein-Barr Virus triggers MS.

We’ll tell you about a class-action lawsuit that accuses Pharmacy Benefit Managers of illegal collusion and price-fixing. (And we’ll explain why this lawsuit could be a huge step toward lowering the cost of your prescription medications)

And we’re sharing our plans for RealTalk MS in 2024.

We have a lot to talk about! Are you ready for RealTalk MS??!

Real Talk MS Podcast